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Speeches and Presentations

Edward P. Richards
Testimony before the Presidential Advisory Council on HIV/AIDS:
AIDS Law - Past and Future
21 June 2005

(General materials on HIV)

Briefing Book Outline

Slides

Additional Materials

Presidential Advisory Council on HIV/AIDS - official WWW site

The presentation and the briefing book outline did not touch on the Tuskegee Syphilis Experiment, which was brought to light in the late 1960s and was investigated in the early 1970s. This experiment began in the 1930s to study the natural history of untreated syphilis in black men. It was continued until the late 1960s, long after penicillin became available (1945), making syphilis treatment safe and effective. This study did great harm to the participants, and to their wives and partners and children, who were also infected during the duration of the experiment. It undermined the credibility of the public health establishment in minority communities and created suspicion of all public health programs targeting minorities. This suspicion continues to complicate HIV control programs in minority communities and must be addressed as new initiatives are developed to deal with the epidemic of HIV in these communities.

The FINAL REPORT of the Tuskegee Syphilis Study Ad Hoc Advisory Panel, HEW (1973) has an excellent discussion of the experiment. It also proposes the basic regulatory system that was adopted for medical research in the United States.

These materials have been added to the online documents.

References

ASTHO: Association of State and Territorial Health Officers, Guide to Public Health Practice: AIDS Confidentiality and Anti-Discrimination Principles (March 1988)
Freedman, D.A. & Stark, PB.The Swine Flu Vaccine and Guillain- Barré Syndrome:  A Case Study in Relative Risk and Specific Causation, 23 Evaluation Review 619 (1999)
Hethcote, HW and Yorke, JA.Gonorrhea Transmission Dynamics and Control, Springer-Verlag, Lecture Notes in Biomathematics 56 (1984)
Joseph, Stephen, Dragon Within the Gates: The Once and Future AIDS Epidemic (1993)
Judson F. and Vernon T., The Impact of AIDS and HIV on State and Local Health Department, 78 Am. J. Pub. Health 387 (1988).
MMWR, HIV Prevalence, Unrecognized Infection, and HIV Testing Among Men Who Have Sex with Men --- Five U.S. Cities, June 2004--April 2005 June 24, 2005 / 54(24);597-601.
Richards, EP. "Communicable Disease Control in Colorado: A Rational Approach to AIDS," 65 U. Dev. L. R. 127-179 (1988)
Richards, EP The Jurisprudence Of Prevention: The Right Of Societal Self-Defense Against Dangerous Persons, 16 Hast Const L Q 320 (1989)
Rosenau, M. J. The Uses Of Fear In Preventive Medicine, Boston Medical and Surgical Journal, Vol. 162, #10, 305 - 307, Mar. 10, 1910
Rothenberg R, Bross D, and Vernon T, Reporting of Gonorrhea by Private Physicians: A Behavioral Study, 70 Am. J. Pub. Health 983 (1980)
Shilts, Randy: And the Band Played On (New York: St. Martin's Press, 1987) (not the movie)
St. Marks Baths: City of New York v New St. Mark's Baths, 130 Misc. 2d 911, 497 N.Y.S.2d 979 (1986)
Thompson, JR. Is the United States Country Zero for the First-World AIDS Epidemic?'' (2000) {The Journal of Theoretical Biology}, pp. 621-628; and James R. Thompson, Understanding the AIDS Epidemic: A Modeler's Odyssey'' (1999), in Mathematical Modeling, D. Shier and T. Wallenius, eds., New York: CRC Press pp. 41-69.
Tuskegee - FINAL REPORT of the Tuskegee Syphilis Study Ad Hoc Advisory Panel, HEW (1973)
Unthank v. United States, 732 F.2d 1517 (10th Cir. 1984)

 

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